June 6th was the last day of school.  I was pretty excited to get out of there considering I was one of the  first students out of there.  It was a half day so the rest of the day A few friends and I went to the beach where we then ordered pizza.  Yes, we had pizza delivered to the beach.  It was amazing.  June 13th was my first Dr. appointment of ( Read more... )

Update on my amazing lungs ( Read more... )

Tonight is graduation at my high school, of course I'm not graduating yet simply because I am still a Jr ( Read more... )

As I sit here on my bed surrounded by an IV pole, my vest machine, news, meds, etc. I have one word that comes to mind, and that's grateful. I am beyond grateful to sit here and look around and see all of my medications, inhalers, and my big bottle of enzymes. When I was born my parents were told that I would die at the young age of eighteen. How ( Read more... )