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[lorahlungs]

so im reading alot of other peoples journels,, and i stop and think there is a hugh amount of you that still either go to school or work, what have i been doing wrong? i havent been able to work for 8 yrs and left school in 2000. i find it fascinating you guys still do these things.
Also alot of people talking about this VEST thing what is that.

Comments

[_garvin]

i haven't worked in 2 years, but I still go to school. I'm hoping to start work here again in the next year too. My health is getting much better.

The Vest is basically just that, a giant vest that you strap on your body and it's connected to a machine through an air hose that Rapidly pulses air into the Vest, vibrating the whole body. i hate it, it itches and tickles

[lorahlungs]

doesnt sound too comfortable, its never been mentioned to anyone on my cf unit is it a new thing??, your pro pic misfits??

[_garvin]

Actually Yes it is Kelly from Misfits.

as far as the Vest goes, I've had it for around 10 or 11 years now I think? It's been quite a while. It probably hasn't been brought up by your CF team because It's not really that effective a treatment in my (non medical, CF patient) opinion. Sadly enough, I lose more and more faith in my Doctors every visit I have.

[lorahlungs]

i have to agree with you on that one i lose a bit of faith in them also, its like as i get older they completely contradict what they said when i was younger

[wunderkin72]

I haven't worked since 2006. This past summer my husbands boss hired me to do some light filing once in a while... but I got to work all of three times. I'm on disability. I just can't ask someone to employ me when I'm going to be gone every other month for two to three weeks at a time. But it's nice to make a little extra money doing work when I am needed.
I don't use the vest. They tried it on me years and years ago, and it gave me a panic attack. Honestly, I think it's an over priced piece of equipment when you could just as easily take a walk or have another person bang on you. It made me feel trapped.

[lorahlungs]

wonuldnt like the feeling of that so guess its good they dont use it here, your right though i feel that way about work i cant ask someone to employ me when i know myself i wont be there alot of the time. i'm on disability also. i have started bein admitted and having iv's every three wks hate it

[taiirei]

The vest thing is I gather mainly used in the US and not the UK. Reports say it's not that effective really!
Have you tried using something called 'power plate'? My bf tried it in the gym, you stand on it and it vibrates you like crazy. It's supposed to help condition your muscles or something but he felt like it could help with his lungs :)

[lorahlungs]

i think we have something like that we call it a vibro plate, i may look into that thanks

[drowninglegion]

I'm 29, work full-time and have a Master's Degree. I'm going for a career in the music industry. So far my health is holding up, but I do agree that the Vest doesn't seem to do much and I'm glad to find out that I'm not the only one who feels that way. I'm starting to look into other methods of airway clearance, because it is an important part of my care. I was very bad about keeping up with my treatments and meds up until about 3 years ago. Now it's crucial. I can't function without my meds. Hope you feel better soon! :)

[lorahlungs]

that is fab to hear, i love singing won few comps for doing it, have you ever norticed poeple with cf are quite creative