Today I took a deep breath (and in shock at being able to do so, took another couple) and then made the decision to go swimming for the first time since the beginning of September.  I always find it incredibly hard to make the decision to start swimming again after a long period of not being able to.  i have to be able to cope with getting there, ( Read more... )

Having actually managed to get properly dressed and out of the house on sunday, I then realised my cleaners were due on monday afternoon and as I really can't be around atm while they're cleaning (the whole point is for them to get rid of the dust not sweep it in my lungs) and as mum was running out of (in date) food I said I would take her food ( Read more... )

Due to the possibility of getting an extra hours sleep last night I'd decided I'd make a huge effort to get to Meeting this morning.  It's the annual Meeting weekend away which means only 3 or 4 people left to attend in Wakefield (we're a very small Meeting anyway) and I haven't been to Wakefield since august and to Meeting at all since september ( Read more... )

I know I should just be so very very grateful that I can breathe and am not dead or in hospital, but I am getting so very very fed up with this now!  I've got a follow up appointment with chest clinic but not till the 18th Nov, although they've said they're happy for me to ring for cancellations on a regular basis (daily phone call ( Read more... )

My peak flow is now up to around 430, it should be around 480-500 but it's amazing to be able to breathe without thinking about it or without it hurting too much.  I'm also able to talk for longer without it hurting much - last night I had 3 phone calls and managed to talk to them all, although it was a good job Chris didn't ring till around 10pm ( Read more... )

Thankyou so much to everyone who has been so supportive, I'm feeling truly loved and wrapped in a blanket of hugs ( Read more... )

I had a fabulous time at Yarndale a couple of weeks ago, a group of us (thankyou so much Nicola for organising) stayed at the Airton Quaker Hostel for the weekend and had a fabulous time pottering around (or being much more active) around Malham and then a visit to Yarndale for those who wanted to.  I felt very supported by everyone and huge thanks ( Read more... )

There has been a LOT of reading this year, mainly because I've not been well enough to do other things and also because the kindle is brilliant when I struggle with holding books (my hands struggle with gripping a book and also with the weight of even pbs when I'm going through a bad ME patch.  So in one way it's great that I've managed to read so ( Read more... )

I know I haven't posted for ages, but am a bit in shock about how much I read in July.  Admittedly most of them are Miss Read or Enid Blyton or other kids books and I didn't really knit at all in July.  Also although I can't read when I'm having a really bad ME phase, it's about all I can when I'm recovering from it - providing it's very easy ( Read more... )

Just checked and I appear not to have posted my monthly book journals since July - and there's no way I'm going to post 5 months worth at one time!  So here is the total for 2012 - and I promise to "try" to do better in 2013 ( Read more... )