Update from the pain doctor

Sep 18, 2013 12:30

I just realized that I posted on my private journal, but I forgot to post here. Last week I went to see a doctor who specializes in treating CFS and Fibromyalgia. Based on a two hour interview with me and reviewing my lab tests, he does not believe that I have fibromyalgia ( Read more... )

update, diagnosis, doctors

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Comments 5

cuppykate September 18 2013, 18:01:13 UTC
wow... well although I'd be disappointed if I was told I didn't have fibro and CFS after all this time, I think the way he actually listened to you for 2 hours, and thought about it that much, that is so much more then most of us get! I hope you get some helpful answers soon. I'm just very pleased to hear you were seen by such an attentive doctor.

I am sorry though, like what you said about trying to explain such fatigue and pain without a name, since it's hard enough to get any understanding even with the name fibro, of cfs. But I'll be hoping for the best for you x

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bedlam_n_bedlah September 18 2013, 18:11:33 UTC
Yes, a lot of pros and cons for sure. Thanks for the well wishes.

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kalakumari September 18 2013, 19:16:37 UTC
Yeah I'm kinda in the same situation. I may or may not have fibro anymore according to the doctor, but it's mostly because I'm better at managing the symptoms than I was in the past. I really wish there was more help for us "moderately disabled" people who don't fit into the black and white categories of abled/disabled, but still need accommodations and assistance.

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bedlam_n_bedlah September 18 2013, 21:07:33 UTC
I've been wondering if it's early onset or pre-fibromyalgia. It's like not full-blown yet or something.

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melalgia September 28 2013, 01:56:10 UTC
Wow, I am amazed at the detail and care that seemed to go into that letter. I wish I could go to your doctor!

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