THANK YOU TO ALL WHO DONATED!!! Our team raised $1750 and the walk total raised over $6000 for Intracranial Hypertension Research! THANK YOU THANK YOU THANK YOU ( Read more... )

So I went to ANOTHER doctor - who I really don't like ( Read more... )

Many of you know that I was diagn​osed with Intra​crani​al Hyper​tensi​on ( Read more... )

I had to go get another MRI yesterday. I called my internist in tears because I cannot live like this for the next six months.

They were able to schedule me in Neurology for next Wednesday.

I got my medications upped.

I don't know what to do...my world is falling apart and I just want to feel better.

Everything is worse. Literally everything ( Read more... )

So I went back to the doctors yet again. My ears have gotten progressively worse so they upped my medication yet again. I am now on 2000 mg of Diamox a day. Not fun ( Read more... )

So I think my vision is slowly getting worse again. I don't have the double vision anymore but I keep getting these like dots in my field of vision and sometimes I see like something moving when nothing is there :(

My ears are worse and I am having trouble hearing now too - not cool

And pretty much everyone has ditched me for my birthday...

So my hands and feet are still always cold no matter what I do. The medication is also making me really tired so I sleep a lot. My ears are getting worse. The pulsing noise is louder and now my ears feel full. I keep getting a painful high pitched ringing as well.

Gah I hate this

Directions ( Read more... )

So I am doing a Walk A Thon for Intracranial Hypertension

It is May 17 - anyone wanna join my team?