What PCOS means to me... (TMI)

Sep 10, 2011 10:28

I have Polycystic Ovarian Syndrome (PCOS).

I feel like less than a woman sometimes. . . )

my body is rebelling

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Comments 8

superri September 10 2011, 23:09:35 UTC
People are dicks. You have every right to feel and be the way you are and they can't say otherwise. I didn't know you had PCOS and it makes me admire you even more. You so kind and giving, it's amazing. I doubt I'd be able to deal with such a sucky situation as gracefully.

Out of curiosity, are you on the birth control pill? While never diagnosed with PCOS, I used to have really bad cramps and an unpredictable period. There was a time when I went to the ER because my mother was so worried about the cramping. After going on the pill, the cramps could be dealt with and it was SUCH a relief to know when the next period would come. I know it's not the same thing- I was just wondering if that could help with some of the symptoms.

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lesyeuxaveugles September 11 2011, 00:07:03 UTC
I am not on birth control because it sort of. . .masks the symptoms? Like it helps regulate periods and hormone levels but it doesn't deal with the underlying cause which appears to be some sort of insulin deficiency or well, they don't even really "know" that for sure. But I've talked to my doctor over and over and she swears that the birth control pill will only mask things not make them better. If I took the glucophage more often, it would make the PCOS easier to manage and not as cringe worthy--- I just don't like having to spend so much time in the bathroom after taking it. I'm considering going on a carb-free diet simply because others I've talked to swear it makes the side effects of glucophage go away.

Sorry to like...vent about meds there. Thanks for caring, ILY :) And as a side note if you can and even if you already have, get tested for PCOS. It's been linked to cervical cancer and infertility and bad cramps + unpredictable periods is a big tell and knowing is a huge benefit.

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superri September 11 2011, 00:48:38 UTC
Huh, I didn't know that. I guess it's all a balancing act. If a carb-free diet could help, I say try it. Please don't feel bad about venting, it's a really stressful situation and you seem to be handling it the best you possibly can. :-)

I'll talk to my doctor about all that next time I see her. That reminds me that I really need to make an appointment before I go to LA.

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doozer7787 September 12 2011, 02:13:32 UTC
I (and she can attest to this) have always found it SUPER weird that her dr doesn't want her on birth control, because when I got diagnosed it was the first thing they put me on. Along with the glucophage, which I stopped taking for the same reasons.

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ambiepambie September 11 2011, 13:29:36 UTC
As someone else who also suffers from PCOS, let me first say how sorry I am that you have to go through all of this.

What has helped me is making the switch to a low-carb, no refined sugar diet. I eat as few processed foods as possible. It's still a terrible struggle to lose weight, but I've managed to get 15 lbs off since June. My acne hasn't been as bad since I made the switch. I think it also helps to just focus on the taking care of yourself aspect of exercise instead of the losing weight part of it. Otherwise, you get pissed and discouraged every time you step on the scale.

If your medicine is making you that sick, talk to your doctor. It's so important to get the insulin resistance under control. If glucophage is making you so sick that you can't take it, see if there are other options.

I hope that you find a way to help get your symptoms under control. I know it can be a battle, but it is so worth it to feel better. If you ever want to talk to someone else who has been there, let me know.

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lesyeuxaveugles September 11 2011, 15:59:57 UTC
I don't actually know anyone who has managed to get control over their symptoms-- we're all pretty stuck in the "medicine makes me feel crappy, exercise is discouraging, and all I want to do is cry" stage. Which doesn't make for a great support system if I'm honest.

I have talked to my doctor re:meds and she just keeps insisting that everything else will not help as well as the glucophage will. I've been on it a year and a half and go through periods where sometimes it makes me sick and sometimes it's just a slight "oh, I can feel something changing" feeling. Right now I'm just permanently stuck in this sick, sick, sick feeling.

Your diet helped with the acne? that's heartening! Do you have the icky facial hair because if I don't find some kind of solution I'm going to shave off my face. Well, I mean maybe not, but DRAMATIC DISLIKE.

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ambiepambie September 11 2011, 21:00:35 UTC
I was diagnosed 5 years ago, when we were trying to have kids, and I remember that stage of "this is all crap and I hate it so I'm going to sit over here and cry" so very, very well. It goes in cycles for me, depending on how well my symptoms are being managed, and, honestly, how bad my baby fever is at that point. Right now, I'm in as positive of a place as someone can be about having a punk uterus and hormones ( ... )

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notaclue911 September 11 2011, 22:11:59 UTC
I hate that you go through this. :( What about trying a new doctor?

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