Comments | mlion: Fibro update/new meds that actually help

mlion

Fibro update/new meds that actually help

Nov 21, 2006 14:37

I've had fibromyalgia and lupus for years, diagnosed in 2000. I've been on a cane since then, with severe pain from my hips to my toes, and in my arms. Fibro is a weird disease, and has been a difficult one for researchers to track down. My doctor was at a conference a few weeks ago, and heard a presentation on the probable cause of fibro, and a ( Read more... )

medications, medical, fibro

Comments 23

chris_walsh November 21 2006, 22:53:28 UTC

Wow. I know someone who fits that description. It would make sense. A lot of sense.

Meanwhile, it's wonderful to hear you're off the cane! But you should keep it, maybe make it stylish like Dr. House...

kyra November 22 2006, 15:06:13 UTC

And it's wonderful for hitting people with!

mlion November 24 2006, 22:04:22 UTC

And grabbing errant Dubhs around the neck, and kittens from under beds, and shoes from under couches, and tripping small screaming running children.
Basically, I have a Swiss Army Cane, and I'm not afraid to use it. ;)

wordweaverlynn November 21 2006, 22:54:23 UTC

Oh, that's wonderful news!

mlion November 24 2006, 22:04:54 UTC

I was amazed by it, and how fast it worked. :)

selkie_b November 21 2006, 23:00:53 UTC

That makes so much sense! The symptoms are very similar to rheumatoid, but much harder to pin-point and chemical imbalance (vs. RA's auto-immune) - wow! *light bulbs*

This is such great news for you! I hope the effects last and you don't have to keep upping the meds or anything silly like that! YAY!

mlion November 24 2006, 22:05:40 UTC

I hope so! It's so amazing to be walking at my old usual speed, and without pain. Kind of like a dream, in many ways.

winterknight November 21 2006, 23:02:22 UTC

wow. i will have to mention that when i go in.

since getting off caffeine (which i was told can mess with norephinephine levels in some people) my pain has decreased considerably.

the description your Dr gives is very similar to other theories i've heard. i first exhibited fibro symptoms after a severe case of mono, which i believe i got due to the extreme stress i was under at home and at school. it got remarkably worse while i was living in a mold infested house and having non-stop panic attacks. it all makes sense to me.

mlion November 22 2006, 00:15:33 UTC

I've read about a number of people getting fibro after mono, flu, etc. And stress does a number on your body - I was under that kind of stress growing up as well, so the "fight or flight" adrenaline reaction makes sense.
And...with a number of family members with restless leg syndrome (I've got a mild case), the Mirapex will come in handy. ;)

(The comment has been removed)

mlion November 21 2006, 23:38:19 UTC

Link away - that's why I made it a public post. ;) I like Cymbalta too, and I've been on a batch of others in my life it works well for me, and it's been a lifesaver with the fibro-beast.

mlion November 24 2006, 18:23:30 UTC

Tell your friend - the one who can't do Cymbalta - that another fibro person has had a lot of luck with Lyrica. I have no experience with it, but she raved about how well it worked for her.
Heh. I love this little info grapevine. :)