Sometimes it really is unfair what we get in terms of our bodily misfunction. I try to advoacte for as many disabilities as i can dear. *unpainful hug*
Wow, this totally makes me realize how little I know about the process of medical research. I've heard of big fundraisers like the AIDS walk and cancer marathons and such...but these raise money for *existing* research, right?
How does an average person influence what research gets done in hospitals and universities in the first place? I'm kind of startled to discover how little I know about this topic.
I agree wholeheartedly... do people realize what I could be doing as a biochemist?? I have so many ideas that overlap with nanotechnology and physics. If I didn't have fibro, I damn well would make a big difference in this world. And all because of a little shot that was supposed to help another invisible disease that makes me more prone to autoimmune diseases....
Hell, the research I've done on fibro being a neuromuscular disorder and *my* theories on it are being backed up by people who don't have it and therefore, can spend 14 hours a day in labs without crying in pain and falling over from exhaustion.
Now I have to go to take a very hot shower on a hot day to get my muscles working properly.
*hugs* I love you. We'll figure this out, I promise.
i completely agree and understand. i also feel the depression/anger that can stem from comments like the one you quoted. i'm on an online support group, but i only read the emails if i can handle it, emotionally and physically.
i'm sorry it took me so long to check this post and your others. still recovering from babysitting.
thank you for writing this. it's such a mirror of my own thoughts and feelings.
Comments 5
*unpainful hug*
Reply
How does an average person influence what research gets done in hospitals and universities in the first place? I'm kind of startled to discover how little I know about this topic.
Reply
I'm to the point where I am just pissed as well.
I'm TIRED of it.
I want to hand that card back please, and get the immune system that isn't attacking the joints. K? Where's the reciept?
Reply
Hell, the research I've done on fibro being a neuromuscular disorder and *my* theories on it are being backed up by people who don't have it and therefore, can spend 14 hours a day in labs without crying in pain and falling over from exhaustion.
Now I have to go to take a very hot shower on a hot day to get my muscles working properly.
*hugs* I love you. We'll figure this out, I promise.
Reply
i'm sorry it took me so long to check this post and your others. still recovering from babysitting.
thank you for writing this. it's such a mirror of my own thoughts and feelings.
((hugs and energy and love))
Reply
Leave a comment