All aboard the loltrain.

[oh_kimberley]

There's been a new report published that suggests M.E. sufferers benefit more from GET (Graded Exercise Therapy) and other, similar techniques than pacing themselves and adjusting their needs accordingly.

I can't actually begin to express my rage on this subject without spontaneously combusting. So, let's get a few things straight, from a personal

Comments

[ittydunn]

I have fibromyalgia, aren't they basically the same thing? And I didn't hear about the not donating blood thing, can you tell me more?

[oh_kimberley]

Fibro has similar but not identical traits to ME, as Fibro is certainly more pain-based and fatigue is secondary to the sheer agony of fucked nerves. For ME sufferers, there's a chance that XMRV (there's a lot of papers on it now, so google will be your friend) - which is retrovirus - can be linked and therefore, blood donations are now banned. The excuse the UK government are using is that it's 'not beneficial for the sufferer' to donate, but it would be worth considering the possibility of passing on the virus through direct blood, as it's obviously not sexually transmitted. Canada has the best documentation and guideliness for ME/Fibro, so if you can locate a message board, post up your details and your wish will be their command.

When you were diagnosed with Fibro, were you tested for the pain-points across the body? That's usually the done thing. If not, you might want to check you definitely don't have ME symptoms because they can be misdiagnosed, or Fibro is secondary.