Comments | seasonalkat: Heavy hearted update

seasonalkat

Heavy hearted update

Mar 06, 2009 10:59

We had our appointment with the neurologist on Wednesday and when I was filling out the forms listing all the symptoms, it suddenly clicked that YES, he does have some disorder and we're doing the right thing by being here. Once we got in the exam room (after waiting an HOUR in the non-child-friendly waiting room), I started getting anxious. E was ( Read more... )

Comments 10

melaniesuzanne March 6 2009, 17:13:11 UTC

*hug* I have nothing useful to advise or say, really, but I am here reading your words and sending good thoughts your way.

aelf March 6 2009, 17:15:06 UTC

I'm glad you have an answer. It's hard. Give yourself time to feel rotten about this (grieve feels like a strong word, especially with a "mild" diagnosis, but I suspect it may be the appropriate word). While it's not the end of the world or even close, anything that shifts our worlds even slightly can feel like a sucker punch.

Y'all are in my thoughts.

merlyn4401 March 6 2009, 18:01:12 UTC

It's got to be a relief on the one hand to have an answer and a path to follow. On the other, it is so, so hard to know something is wrong with your child that you just can't "fix". I absolutely think there is a period of grief while you process. But I know you'll all come out the other end ready to tackle this. *HUGS

allyphoe March 6 2009, 18:08:33 UTC

OK, it's been awhile since I had behavioral genetics, but a dominant disorder is one that only takes one "wrong" gene - and the parent that gene came from would be symptomatic. (Dr. Google says Tourette's isn't Mendelian, so it's not a clear case of dominant or recessive, or just one gene. But there's absolutely no reason to think that it was your wrong gene, particularly if you have no family history.) If it were me, I'd be reporting it to the sperm bank, though.

FX the meds work well for him. It must be a huge relief for him to know that it's not an issue of being a "bad" kid, or not trying hard enough.

slfisher March 6 2009, 20:27:26 UTC

A diagnosis is good. It'll get the school off your back and opens up a lot of possibilities for ways in which the school will have to work with you and make accommodations.

Beat yourself up for the genes if you want to, but what's the point? Did you know? Would you have done anything different?