Support

[sixshadesofgrey]

There are SO many things I have been wanting to write about.. But I'll start with some GOOD news:

Last week I attended the first ever meeting for the Huntington Fibromyalgia/CFIDS meetup group! It's a local support group that my friend Jaime started for people on Long Island, NY with Fibromyalgia and CFIDS (Chronic Fatigue Immune Dysfunction

Comments

[mitchy22]

:) I'm glad you were able to ask for help and only got a little guilt from it. :( I'm sorry I've been afk/afp/afl (away from keyboard/phone/life) for a couple days. I've felt like crap and I'm more of a shut-in when that happens. :) I had a fun time at the meeting with you, and Asia Grill and Pizza and Jaimie and Cara and 3 tiny doggies and a Mother-in-Law.

I'm tired and I'm gonna try to go back to sleep. I'm not sure why I felt the need to post it here instead of e-mailing you but I figured you would like a nice shiny post, so I made a nice shiny post for you.

If you look carefully you can see your reflection in it!

<3,
y'M

shiny posts!

[sixshadesofgrey]

*squish*

It's okay.. I know you need to be alone sometimes.. But you can call me whnever you feel like it and I'll be here for you *KISS*

I am going to Dr. Mitchell Cooperman today :P So weird.. It's literally right down the road..

I saw your post late last night/this morning.. YAY FOR CARTOONS! I go comment in your journal now..

*HUGS N SQUISHES*

[cazul_blue]

It's tough for a strong woman to ask for help. I know because I am one. I feel guilty sometimes too, but mostly I am pissed because I feel robbed of some of the simple joys in life.

I'm glad you have a few people that you can count on :)

[afterlifekid]

You really need to shake the jewish-guilt thing. Think about when you do something for someone else; do you resent the person you are helping? Probably not, right? People (who aren't 'certain family members') usually enjoy helping others. Most of the time it's not a big deal!

You should only feel guilty when you do things like 'murder' or 'steal' or 'over indulge at AG'.... Asking for help is OK!!!! I know you are stubborn, and that is GOOD that you WANT to do things for yourself, but know when it's okay to ask for help.

Seriously if you need any help with errands LET ME KNOW! You can even call me at work and I can run to the supermarket and drop stuff off. I will even get a c-phone if that helps you out! Text, call, email, harass me!! Whatever you want! I FEEL GUILTY if I can't help you!!

I will even help you pick out your new fall clothing

[mela_4_me]

LOVE those sexy shoes!!!!!

:D

[sixshadesofgrey]

HAHHAHAAAAAAAAAAAAA!!! Okay that was a TRUE "LOL". I am cracking up over here!! Mmm.. love me some mom jeans

[mela_4_me]

I know what you mean about the guilt. CafePress.com has a division that sums it up nicely.. "But you don't LOOK sick..."

I think that is the part of fibro that is the hardest for me. Days that I hurt so bad that moving makes me want to cry, or days that I am so fatigued that my limbs feel like they weigh 1000 lbs. apiece. People look at you like "What the hell is wrong with you, you are too young to be moving like you are 103 years old..." And when you have to ask for help from people who just don't understand, it can be embarrassing, and a huge blow to the morale.

Something else I am finding is that dating is very hard when Fibro is involved. The type of gals I like are always wanting to go hiking, rock climbing, etc....and the moment I say "I can't do those things because of this disease...", they back right off.

I am so glad that you have found a support group, sweetie...I wish I knew of one in my area. Maybe when I have my own place, I will think about starting one.....

*HUGS*

[sixshadesofgrey]

I forgot where you live cus I have a sucky memory.. But on your MySpace it says Tacoma, WA.. I looked it up on the website with the fibro support groups.. Here's what I got

[liquid_eve]

this post made me smile for so many reasons :)