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Painful Realization
So...I couldn't handle the higher dose of medication. Which is fine...still doing good right now ( Read more... ) -
Make September #DystoniaAwareness Month!
I have Cervical Dystonia. Because there is so little is known about it, it took about a year (I was lucky) of searching for get a proper diagnosis. But there is no cure and treatment is hit and miss. Being diagnosed with Dystonia comes with this silent responsibility to get the word out there that this is indeed a problem that needs to be ( Read more... ) -
Health Log Entry 082714
So far this medication has erased a years worth of symptoms, its truly amazing!
I just wish the stomach issues would die down. Its ripping my stomach apart.... -
Health Log Entry 082414
Good day, walking great. Some tremors, some spasms and cramping. Pain is worse than yesterday but still pretty manageable. I have a giant headache and I'm very foggy and tired. Heading to be... -
Ack....
Quarter to 2pm and the tremors and pain are back...
...it is day one though. -
Health Log Entry 082314
Started Primidone last night. I wasn't expecting it to have such a huge impact so quickly. Within the first 15 minutes my muscle relaxed in a way they haven't in...months? Many months? But then I started feeling pretty tired and VERY spacey. I was pretty disorientated, but my gait was already much looser and it was far easier to walk with out my ( Read more... ) -
Progress!
So I have cervical dystonia. No surprise there. I will now to take a new battery of test to rule anything else, there is finally forward progress in my health situation.
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Health Log Entry 082114
So yesterday started off ok. Decent sleep the night before. I have been taking it easy the last few days as earlier in the week I was pretty shaky and fatigued. Drawing seems to be my only outlet these days as any physically strenuous activity ends in tremors and shaking ( Read more... ) -
Restarting This Journal
Not sure if anyone actually reads this anymore. But I need a place to record medical 'happenings' and to generally ponder and vent. I updated a lot of info on this account. I'm not expecting a huge following on here and LJ itself isn't as popular as it used to be ( Read more... )
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