Lately ive been celebrating that I'm on a lot less medication than a year and half ago. Mostly due to having developed intolerrances to it or its not working but ive been celebrating all the same
( Read more... )
Holy cow, you are on a lot of medication. I had no idea. I have a few questions, you don't have to answer of course! If you're on the Butrans why do you also take paracetamol? Paracetamol did nothing for my pain at all, they could have been sugar pills, so I'm curious how it works for you. Also your stomach meds, if you take odansetron for sickness why do you take domperidome as well? Again I just ask out of curiosity, not criticism.
I see you are on daily antivirals and antibiotics, has it helped at all? I don't know how your ME started, mine started with EB mononucleosis. I've taken antivirals for non-ME related coldsores inside my mouth and felt better on them and also when I was given antibiotics I felt better too. I've taken all but 2 of your meds, just never all at the same time.
Are you on some special ME doctor protocol? How long have you been on the current drugs? Do you feel any better at all? How often do you have to get your liver function tested? Are you scared about interactions from drugs making you sicker?
Hi, the butrans has reduced my pain but not nearly enough so I was on paracetamol and codeine to help a bit more. I developed an intolerance to codeine so had to come off it (at least that's 8 less tablets to take!), paracetamol I find helps a tiny bit when I'm on the butrans, only a tiny bit but better than nothing, the domperidome is to help with my neuro swallowing mechanism problems (and speeds up the rate my stomach empties as a bonus) where as the ondansteron helps the nausea and vomiting. I've not noticed any difference from the antibiotics or antivirals yet so it's not looming hopefully but got 3 months to go. I have mouth sores (wanting a new crop of them as I finally have a swab to find out if ry are that), if you felt better on them then I would def push for them. I'm not on any protocol, just things at I need to help certain symptoms etc rather than a generalised treatment for all. I'm not too worried about interaction (minus the interaction which had me rushed into hospital in an ambulance once!) but it is a problem when
( ... )
Comments 2
I have a few questions, you don't have to answer of course!
If you're on the Butrans why do you also take paracetamol? Paracetamol did nothing for my pain at all, they could have been sugar pills, so I'm curious how it works for you. Also your stomach meds, if you take odansetron for sickness why do you take domperidome as well? Again I just ask out of curiosity, not criticism.
I see you are on daily antivirals and antibiotics, has it helped at all? I don't know how your ME started, mine started with EB mononucleosis. I've taken antivirals for non-ME related coldsores inside my mouth and felt better on them and also when I was given antibiotics I felt better too.
I've taken all but 2 of your meds, just never all at the same time.
Are you on some special ME doctor protocol? How long have you been on the current drugs? Do you feel any better at all? How often do you have to get your liver function tested? Are you scared about interactions from drugs making you sicker?
Reply
Reply
Leave a comment