The hospital won't let us have cards up (mine are staying for now!), all started over some bunting on my ceiling. I wrote this letter to them although I won't actually send it, it's just therapeutic!

What have you seen today?

You woke up in your bedroom, bleary eyed until things came into focus. You probably walked to the kitchen, the bathroom and ( Read more... )

Today's post is a voice that desperately needs to be heard, if you read only one of my posts this week, please make it this one. It is by a friend of mine, if only she was the only one who has been through such horrors, sadly she's not alone and children and adults are still experiencing this at the hands of the medical 'profession'.

"Sadly like ( Read more... )

Kicking off M.E awareness week with a great post written by My Best Mate Kate, I would be so grateful if people would take a moment to read this weeks posts from people who are rarely ever heard or seen by the outside world due to the crippling effects from this Neurological condition.

It is ME awareness week. I don’t normally talk much about my ( Read more... )

30 ways to save £1

I am known in my family for my money saving ways, one year my Mum had a massive pile of gifts under the tree at Christmas, all brought for a fraction of the retail price. I could just of pretended I had spent lots of money but I'm proud of my bargains, see that gift I gave you? Well the company were doing a pre Christmas, one day ( Read more... )

After spending over a third of last year in hospital I have decided to have lots of fun on my virtual shopping list.
Confused.com are giving away 60,000 Nectar Points and you get to choose how you would spend them.
I have decided I would love to go to Disney and feel the magic, while munching sweets in a pretty dress!
http://pinterest.com/vikkilouise/ ( Read more... )

In hosp but...


( Read more... )

Some of you may know I have been fighting for medical help, one of the reasons the pct have turned down my case is there is no medical based evidence that the treatment would improve my ability to do housework. I kid you not, my doctor is fighting for funding for a ward and is also being asked to prove patients ability to do housework will improve ( Read more... )

Although we don't post news updates frequently we are always very busy making the families we help smile. Just a few of the things we have sent recently

Balloons to children having a difficult time

( Read more... )

Had a visitor yesterday which was lovely, crashes after. When coming around I had a desire to write for some reason, this is what I did

Heart thumping, beating far too fast to count
Sensation of slow rotating in your head like an old carousel
Jerks hitting your limp body with the impact of lightening bolts
Spasms rippling up and down legs like waves ( Read more... )

Long time now update-still in hospital

So it's the end of October now, I came in in August, able to crawl and spend some time out of bed, due to go home the end of August. Since then I've relapsed, been diagnosed and started treatment for polycystic ovary syndrome, started more treatment for POTS, lost my Nan and generally been an awful time.

I am ( Read more... )