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I wrote this for my nans funeral, I'm not well enough to go but will record it onto my iPad and it will be played
I searched the Internet for a nice reading or poem, there are thousands to choose from but none of them felt right to me. I saw one written as a letter sent down from heaven and instantly remembered the stacks upon stacks of letters and ( Read more... ) -
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Hi, I'm ok but need a bit of a moan, I lurk here but can't remember the last time I posted in this section.
I'm in hospital at the moment, came in for 2 weeks MOT then out of the blue I had a mega crash paralysed, uncontrollable movements made worse when touched or moved, couldn't move a finger and felt awful. The staff are very understanding and I ( Read more... ) -
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An update from vikki's mum from yesterday:
Vikki has made some improvement since Monday. She has a line in her leg for diamorphine and midazalam and she has managed to have less today but she is very much
looking forward to her nightly dose-:) they started catheterising her which has made her a bit more comfortable, she still has a long way to go ( Read more... ) -
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Vikki is not at all well and has a relapse. This has resulted in her staying in the hospital for at least another week. Vikki will try and do the best she can in regards to pp but this will be of limited service.
Spoken to Vikki today and she has been in total paralysis since yesterday (Monday) lunchtime. The pain is slightly better due to ( Read more... ) -
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What a couple of weeks it's been, productive at times, nice at others, really tiring at all times!
Aside one member of staff everyone is lovely (my brainfog must of caused me to ask this member of staff to give me her kidney, I had thought I was asking for water to take the tablets with but the reaction was definitely more in line for an organ ( Read more... ) -
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I was deleting some old notes on my iPad and found this which I had written earlier in the year in response to an article in the paper. My local paper also recently featured someone selling a cure, she was diagnosed with ME (within a few weeks of onset of symptoms), was told it would take her 6 months to recover but decided she didn't want to spend ( Read more... ) -
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Long time no update. Just ticking along, been generally worse but focusing on the positive I did have a better day and pushed myself to go to our street party-how often do you have an event outside your bedroom window?! Was lovely to go and speak to actual people! I also saw Grace who is a neighbour with ME (I know 2 people with ME in my road, 2 of ( Read more... ) -
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I've started a few journal entries but not finished, maybe I will try using the dictate function and give a proper update.
Today's update is about the jubilee, one part happy one part sad.
June 2002 the queens golden jubilee, the nation came together and partied hard. I was working hard too at staying alive. I was in agonising pain, bedbound, ( Read more... )
