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Update
In May 2011, I got my lungs. In July, I am getting married. Life is wonderful and I don't feel a drive to write in this blog. I may post more in the future, but for the time being, I am enjoying life. -
It's been a long time
I haven't updated in ages. I've been lazy and overwhelmed and busy and had my mind on other things, and updating seemed unimportant for a while. But it really is very important for me to keep writing in this journal to record what I'm going through. So at Adena's urging I am finally putting the time into doing some writing.
My dad had a stroke. ( Read more... ) -
Donations of Love
On Sunday Oct 24th, a group of wonderful friends of ours from Saltspring Island put up a charity auction on my behalf. Through the magic of the internet, my parents and I were able to attend from thousands of kilometers away.
( Read more... ) -
A year on oxygen
Around this time last year is when I was first put on home oxygen. I had the swine flu, and then a followup pneumonia that knocked the last strength out of me. It was the first time laying in hospital where I thought I might actually die from not being able to get enough oxygen. I got a lot of attention at first as the nurses worked hard to ( Read more... ) -
A Major Milestone
Today I was put on the transplant list! It was a long day mostly spent in waiting rooms in Toronto General Hospital.
My first appointment was at 11:30am, I went to the hospital pharmacy to give them my medication coverage letter from BC health care. This is for my future anti-rejection drug coverage--anti rejection drugs are super expensive and ( Read more... ) -
It's finally happening
Good news, everyone! I'm getting on the transplant list on August 31st! They will be giving me my pager then and I could be matched with a pair of lungs at any moment from there on out. Thanks for all the support that has brought me this far on my quest! I love you all :)
I feel a bit like Roland finally arriving at the Dark Tower at the end ( Read more... ) -
Building
"The Runaway"
'There's no savin' anything
I'll swallow the shine of the sun
There's no savin' anything
I'll swallow the sun
But I won't be a runaway
'Cause I won't run
No, I won't be a runaway
What makes you think I enjoy being led to the flood?
We've got another thing comin' undone
And it's takin' us over
We don't bleed when we don't fight
Go ahead go ahead ( Read more... ) -
Now back to our regularly scheduled program
Hello my friends. I'm sorry for the lack of updates in the past two months, but the fact is that not much has happened on the Transplant front. I haven't had a nausea attack in about 8 weeks which is a pretty huge milestone considering it felt like I was sick CONSTANTLY for a while there. My weight is stable at 105 and I'm still trying to gain, ( Read more... ) -
Woop woop woop woop.
Same old same old! My mom is in BC and my dad is here until the end of the month. I just had a barfing attack on, oh, Tuesday? I started throwing up in the morning while hanging out with my friend Bram, who was even awesome enough to buy me a video game. I threw up for about 6 hours, then got on Maxaran, Gravol, and Zofran in that order. The ( Read more... ) -
You're still here?
Oh hi guys! I was in hospital from Thursday until Today with another nausea spell. No big deal, very mild. I'm back in action feeling great. We're trying a new pill to help my gastric motility, and we're hoping to see me stable on it for a few weeks, at which point I have a feeling things will move forward with transplant. I am still very ( Read more... )