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Sep 18, 2012 21:23

Sometimes the stress from being sick isn't even the being sick part. It's the people around you. I am a person who uses avoidance as a coping tool. If something is going to stress me out, I just don't think about it. If I DO, I end up obsessing. Non-stop. So for me, it's better to just push it aside, and deal with it face to face when it's time ( Read more... )

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daydee September 22 2012, 01:08:23 UTC
Would you be open to doing a FB group or something like that? I know that during my ICU stent in April and my transplant in June, having that group was a sanity saver for both Matt and me. If someone wanted information, they could get what we were comfortable with sharing, and we only had to go through the process of sharing it once.

And ugh to all the communication stuff and the interns seeing if you know the plan... That stuff is so fucking frustrating and annoying and patronizing and and and. I got so pissed after my transplant because I would have doctors walk in my room and be like "So you've been complaining about heartburn so we're going to...." Um, no, I've not said anything to anyone about heartburn because I haven't had any. They'd give me a funny look, then say something along the lines of "Well, we know that you are having it, even if you don't know you are".... FUCK YOU NO I AM NOT!!!!

/rant

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wunderkin72 September 23 2012, 02:07:55 UTC
The problem is, the people who call and ask don't use fb. Or I'm off doing something and don't update. I should just give less information from the start I think. I told people I might be starting dialysis and everyone panicked. Turns out, it didn't start... and even if it had, it was not something I wanted people freaking out about. Because I'm pretty freaked out about it. Thus I don't want to make it into a big deal, or I WILL panic.

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daydee September 23 2012, 02:39:40 UTC
Understandable. I kept somethings fairly underrwraps in the week after my transplant. Few people know that I had to be re-intubated twice afterwards. I didn't want people to know because I knew that I couldn't handle the mental stress of them freaking out about me.I needed to focus on just me, and that was enough stress.Going under the radar is perfectly acceptable and healthy.

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