finds the nights so beautiful here, in a quiet room with a window opening into the city.
the lights are golden, with soft green, and you can look at each window, guessing at what each occupant is doing.
very like Rear Window, but hopefully, no murders.
the last time i was here was during the hockey riots. that was... interesting.

i wrote that two ( Read more... )

 i have felt this three times.
1.) after my initial, terrible lung infection. after 5 months of suffering, weight loss, breathlessness, production of yucky junk, all through a semester of school and my GP completely NOT seeing what i was going through, i was finally referred to a respirologist (after demanding, in tears, for this) who prescribed ( Read more... )

 i'm exhausted from today.

it's day one of Blue Lightening, and all i've been doing is talking about it, all day.

the unit is excited, the clinic is excited. i was woken 5 times by the resident, CF doctor, nurses, all reminding me about my "new medication". when the fifth nurse arrived to remind me, i told her i had wanted to rest. (i hadn't been ( Read more... )

i wonder how many of CFers take matters into their own hands when it comes to their meds.
say, when you're sick, clinics dither and comci com ca, and you don't want to take the extra step of having to go in the hole?

i did, and i hope it's going to work for me. i AM telling them what i'm doing, i just hope it's the right thing.

it's so frustrating to ( Read more... )

 just had a disturbing memory.
i remember my first bronchoscopy, and how difficult it was because the IV wasn't placed correctly. they were trying to get into a MAC cavity to see the state of things, and to perhaps drain it, culture it, etc. 
afterwards, my respirologist, who is normally very cool and calm, was very visibly upset. they couldn't enter ( Read more... )

(the last bit about the docs is silliness. i like my docs lots. i just like to tease them, too).

with the amount of coughing i was doing in trying to walk, talk, by the end of this entire day i was turning into Gene Wilder in the Producers.
( Read more... )

 well, the inevitable happened, and it has been happening over the last few weeks. 
the fistula reopened, and is now a hole. it's small, though, and weeps. 
it's been painful. the skin cracks, the perineum is raw, and i'm up to trying anything. 
i've used barrier cream to try to save the raw skin, flamazine to ease the burning, an ointment
to numb the ( Read more... )

 "Don't worry! You won't feel a thing.... till I jam this down your throat!"

LOL! 
i'm kidding. 
they freeze everything up before they slide anything in. 
as i said, it went well. they discovered i have a strong "tolerance" to the medications they gave me. (fentanyl and some kind of muscle relaxant). ? mum said i just metabolize things quickly, but i ( Read more... )

 huh! so, bronchoscopy tomorrow.

the cavity on the right lung has had some debris and fluid that is stubbornly persisting since my last CT. so, they want to pop in and take a look.

i'm on a high dose of cipro right now, which i combined with TOBI in the last week or two of my month.

good vibes, please? my last bronch wasn't comfortable at all due ( Read more... )

on facebook, i'm REALLY freaking out about the Idle No More movement.

well, not that. it's the possibility of fracking that's freaking me out

let's NOT have this here. no.... fucking.... FRACKING. ARRRGHHH!!!!