making New friends with other Cf parents .

i don't even know if anyone else reads this anymore, but i thought i'd give it a try anyway. does anyone else have a really hard time regulating their body temperature? i live in alabama and even in 90+ degree heat i can be so cold. i have to bundle up or take a hot bath and it's just ridiculous. then when i do warm up i can get overheated very ( Read more... )

Last night, I watched a documentary called Claire ik ein mijn broer (Claire, me, and my brother). It's about a family of triplets, two girls and a boy, and the two girls have CF ( Read more... )

( Read more... )

I'm not sure if any of you wouldn't know about this or if it would apply to you. But in the US if you get prescriptions of Creon as your digestive enzymes and don't currently have medicaid, or medicare you can sign up and get multivitamins and a case of Ensure plus or other items of that nature for free each month you fill your prescription. Info ( Read more... )

So I was watching the new Bates Motel TV show, and lo and behold there is a character with CF. It looks like she will be a main love interest for Norman Bates. Be aware that this series has a lot of gore and explicit situations. There has only been one episode, but it seems to be on par with American Horror Story. I'm undecided as to whether this ( Read more... )

On Sunday I had to visit the ER after having this pain in my right side, under the shoulder blade ( Read more... )

Hey Australian CF'ers ( Read more... )

But watching 65_Redroses made me become an organ donor. I used to have the opinion that my organs = my body. Eva changed all that. After the documentary, I realized that when I die, there will be no reason to have organs anymore, so I signed up to be an organ donor, and happily so ( Read more... )

I have two quick questions for you all:

1. at your clinic, do you get your lung function tested at each visit?
2. how is it tested - with a handheld spirometer (quick test that takes a couple minutes, no nose clip, you just take a deep breath in, blast out, and inhale after 2 beeps), or in the big booth (takes longer, wear nose clip)?