im not very impressed with my cf dr ( Read more... )

Hello all. Hope everyone is doing well. I'm new to LJ and looking to connect to others with CF. I'm 32 but did not grow up knowing I had CF. I was diagnosed with CF until I was 24. I went through life wondering why I couldn't breathe and always was coughing. Why I was always sick with sinus infections and bronchitus. Needless to say someone finally ( Read more... )

SO! new to LiveJournal, not so new to CF. I'm 21 and from Alberta, got away from the small town life and now live alone (most of the time) in the city. I never realized how much help I really need sometimes until I moved out on my own, I went to College but was home on the weekends so I didn't notice as much, live too far away for that now. Growing ( Read more... )

Hi there, my name is Josh and my niece passed away from CF last May. I know every person who is diagnosed is diagnosed with like some sort of number with it. What classifies what number you have and what do they stand for?

This isn't spam and its real!, It takes about 10 minutes and I made 50 bucks just for qualifying, its easy cash!

This is for wwmr and it's a panel you join which you get $50 just for qualifying as well do I for referring you then you get put on a list to get paid study's as needed and by that it's just giving your opinion over the phone about cf ( Read more... )

I thought you guys would appreciate seeing this, even if the pictures are a little blurry.

( Behold! )

Does anyone else have trouble with inhaled TOBI? I've got a hoarse voice and scratchy throat, and last night I kind of had to work to breathe a little bit. The real scratchiness and discomfort are pretty much only immediately post-TOBI. I hadn't been on it in a couple years because I had been on Cayston, but I accidentally let my prescription lapse ( Read more... )

I thought I would post something from my own blog here.

My teeth have never been a Problem but they haven't been great either. My gums swell and occasionally bleed and I always get a good talking to by my dentist. This despite excellent care (when I'm well at least; when I'm ill it becomes incredibly erratic).

Today I learned why thanks to a ( Read more... )

Hello everyone.

Most of you don't know who I am (and it's a small wonder, as I believe the last time I posted here was 3-4 years ago, though I follow this community regularly), but my name is Leon and I am the husband of this community's co-founder and maintainer, Caroline, whom you know as cosmicdustEarly this morning, Caroline passed away peacefully in ( Read more... )

Anyone expiriance That moment where you're about to do a blood draw just waiting for it to be over with no big deal...and the nurse says"ok you're gonna feel a slight pinch"...ummmm no! it feels like a butchering knife just went throught my arm...but thanks for the warning. lol :)