Hey guys, I'm not exactly sure how this thing works but here I am! I'm 17 and I have CF. How is everyone feeling??

Hi, Im Nora and I currently have Cystic Fibrosis and am in the hospital for lung infection! Luckly I only have to stay in for 10 days lol! But im 17 and have so many descions to make this year..and i needed some advice! Since yall im sure have already been through this i have questions feel free to answer any! I would appericatie it sooo MUCH! Its ( Read more... )

http://www.npr.org/templates/archives/archive.php?thingId=127413729

It's been a busy week.  Last week I wasn't feeling too hot, but I think the meds kicked in just in time to stay ahead of the crash! Yay! I participated in the CF Foundation Great Strides walk on Saturday.  It was good, but of course sad as always.  Lots of "in memory of" walkers.  I also didn't realize there are only 341 CF'ers in Oregon.  That ( Read more... )

So, I have to go in for a tune up at the end of this week. That means, of course, that I won't be able to work for the next two weeks since I'll be holed up in the hospital...which really sucks because I just got promoted at work, and I don't want to lose that position.

How do you guys deal with balancing work and CF?

I love this time of year.  The sun comes out, it's warm outside and my lung gets happier.  :)  I am not feeling that great today, but I have faith tomorrow I will.  I am supposed to run another half marathon on Sunday so I really really need to feel better. STAT!

Hey all, I am a newbie to LJ. I watched the 65_redroses documentary last night and I decided, what the hey, I'm going to get a LJ too! I am 26, live in California, I have CF and so does my brother who is 30. He is being put on the transplant list, so hopefully he will get better lungs soon :) I don't know how many of you have seen the movie, Power ( Read more... )

I am so excited to "meet" some other CF'ers! :)

What are other people's physio routines ( Read more... )

Hi guys. I have CF also, as well as CF-related diabetes. I regularly do my therapies and maintain a 90+ FEV1/FVC. My diabetes is the hardest to control, but I  maintain an A1C of 7.0%. I also weigh a hefty (in CF terms) 130-135 lbs.

I was brought here by the documentary 65 Red Roses, and hope to find friends as Eva did.

I work with the mentally ill, ( Read more... )