nicholeipickle peacefully and painlessly passed away a few hours ago at 7:20PM PT, surrounded by family and friends.

I wanted to let you all know that daydee passed away this morning at 2:21 AM.

In 2012, she had been fortunate enough to get a double-lung transplant, but had gone into chronic rejection this year.

I thought I'd update the community that a former poster, Maria (sparklesglow, murbot) passed away on November 13th ( Read more... )

I don't have CF, but I was stuck in the hospital for a week due to a nasty neck infection. In that time, I went through 20 something bags of IV antibiotics (ampicillin and sulbactam, plus a bag of vanco that made me itchy as hell), 3 IVs (and the second one BURNED while flushed or accessed), 5 rounds of blood draws, plus a bag of magnesium and a ( Read more... )

Hello. I haven't been on in forever, so I don't know who all still uses this ( Read more... )

I just thought that I would post this here, since I was (am) a friend of spirit_of_kina's on Facebook ( Read more... )

Technically it's Wednesday... but still.

So here I am. My first post and I am currently sitting here doing treatments. Yay... boo.

I figured, like most other chronically ill bloggers, my first post will be the story of my illness. Which seems to be the story of my life, even though I try super hard not to let it be.

When people ask about my ( Read more... )

I joined this group because i have recently lost a childhood friend of mine to the terrible CF , and she was the most inspiring person to me , I watched sixty five red roses on Netflix the other night and It reminded me so much of my friend... so i think that anyone who is having to fight this disease and trying to make the best out of it are the ( Read more... )

  As I sit here on my bed surrounded by an IV pole, my vest machine, news, meds, etc.  I have one word that comes to mind, and that's grateful.  I am beyond grateful to sit here and look around and see all of my medications, inhalers, and my big bottle of enzymes.  When I was born my parents were told that I would die at the young age of eighteen ( Read more... )

Hey there (anybody who is still here)...

By request ofmorelikeherself I wrote up a blog post about my experience doing yoga with CF.  I'm always continuing to learn so if any of you have any insights to share about your own experience, I would love it.  I've just been offered a job teaching a regular yoga class (up until now I've just been subbing), and the ( Read more... )