Hi guys. I need some advice/help. My orthopod is taking the "softly softly" approach to my knee, so rather than leap straight into a reconstruction, he's going to do an arthroscopic meniscal repair on it this Friday. He's said he won't know until he's in there whether he'll be able to stitch the gaping hole in it or if he'll just have to remove ( Read more... )

What kinds of problems have you had with your hips/pelvis? I've been to 2 doctors and worked with 3 physical therapists, and nobody can agree on what is going on. I felt my hip dislocate while doing a warm up for an exercise video 2 months ago. Since then it's gotten progressively worse to the point that I can't work a full day anymore ( Read more... )

Hi everybody. I'm so happy to have found this community. About 2 years ago, my orthoped diagnosed me with a "genetic hypermobility disorder" but never gave me a name. Since then I have had shoulder surgery for recurring dislocations/subluxations and had over 100 visits with my physical therapist. Until this year my problems had been limited to ( Read more... )

Just a quick introduction. I am a 18 year old girl with a tentative diagnosis of Type 2 or Classical type EDS. I also have early onset osteoarthritis and fibromialgia and possibly something called Albright's. I am the kind of person who basically collects information on just about anything so when the rheumatologist scheduled me for  physical ( Read more... )

my husband recently tried an analgesic Chinese called White Flower linament (hoe hin). his hand had been hurting very badly for days, and keeping him up at night. when he put it on, the pain went away! this is amazing! id love to see if this helps anyone else. he found something that says it is taken internally also, i am researching that now. if ( Read more... )

LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support ( Read more... )

Previous post.
Thank you all for your suggestions and support. Went back to my orthopedic doctor today, because the pain got much worse (my whole arm from shoulder to fingertips is burning.) Looks like he finally understood what's going on, and yes, it's EDS. A tendon became very loose so the elbow is constantly popping out of the socket, and ( Read more... )

Hello everyone. My name is Briitany. I am 23 years old. I am not currently diagnosed with EDS, but my mom has been diagnosed with EDS for about a year now. She is 41 years old and the pain has become so unbearable that she has been unable to work because of it. She also suffers from Fibromyalgia, amongst other things, of which I cannot name off the ( Read more... )

Just wanted to find out if anyone in this community experienced similar problem with an elbow joint ( Read more... )

I was so thrilled to find this community!!! The only people I have every met with EDS are members of my family. My daughter was actually the first one diagnosed. She was diagnosed at the age of 4, which led to my diagnosis at 25. My brother has it, too, and I would bet the farm that my dad has it, although he refuses to be seen by the geneticists ( Read more... )