So I have a preliminary diagnosis of Ehlers-danlos syndrome and use a cane full time I am fighting to get a full diagnosis and a medical team behind me but I’m not hopeful. In the meantime I am trying to find ways to exercise safely and without pain I’ve found that water helps, so tomorrow I’m going to my first aqua dance class, I’m really nervous ( Read more... )

Option 1
Wrist denervation: The idea behind this operation is to cut the nerves taking pain signals from the wrist to the brain so the pain is either not felt or felt much less whilst also NOT damaging the important nerves that provide sensation and movement to the wrist and hand. To remove all the nerve supply (denervate) to the wrist fully is not ( Read more... )

Hey! I'm new to this. I was diagnosed with Ehlers Danlos in 2009 after having severe joint pain, frequent dislocations, torn shoulder muscles with no injury, upon other things. Soon after being diagnosed, I had to quit dance. I was a junior in highschool. I was told I have hypermobility and my geneticist believes I have strains of vascular which is ( Read more... )

Hi I am new never been on here before I am looking for any advice on who to see for a diagnosis my gp has agreed to refer me to a rheumatologist but don't know who to choose
Any advice welcome
Hope you all well
Regards
Shell

Hello all ( Read more... )

Hi everyone!
Im new to this but so glad i found it!
Im 26 year old female from ireland. I was diagnosed with vascular type ehlers danlos many years ago.
it has truely been a rollercoaster ride of events for both myself and my family.
i look forward to getting to know you a

Early onset osteoarthritis in the hands and knees due to Ehlers-Danlos III.

The rheumatologist that I saw yesterday told me that the osteroarhtritis in my hands resemble that of a 65-70 year old. I have osteophytes on both pointer fingers.

As for my knees, they bow in quite a bit, as seen hereI didn't get any meds yet because I have to get a ( Read more... )

I'm 99.99% sure I have Ehlers-Danlos Hypermobility type ( Read more... )

Hi my name Is Hollie-Rose, I havent been diagnosed with this disorder but since i was about 3, im 21 now, i have been overly flexable, i have no arch support in my feet at all and my knee caps dislocate to the point where i am now on disability, my hips have started to feel like they are slipping out and i can always feel my ligaments grinding over ( Read more... )

Hey guys! So, May is national Ehlers-Danlos month and i'm trying to do all I can to raise awareness! if you want to go all out to support this illness you can wear zebra striped ribbon and zebra striped clothing all month, but if that's too much to ask, you can all spread a litte awareness just by "liking" this facebook page and suggesting it to ( Read more... )