I got a call from my PCP today. She says that the ultrasound confirmed that I do have PKD, but thankfully the blood test shows that my kidneys are fully functioning.
Crap. I'm sorry you got the bad news. I guess the good thing is that knowing about it now can help you make good choices for kidney health down the road so having PKD never causes you any big problems.
Nope no pain - in fact it's probably going to be one of those things that i won't have to bother with much until it does cause me pain (other than regular check-ups to see how far it has progressed).
It's more just keep your kidneys as healthy as possible for as long as possible and maybe they'll last me my whole life??
For instance, my mom didn't have any pain until around 56 (and she smoked her whole life). Her kidneys are completely covered - so much that you can't tell they are kidney shaped anymore.
Definitely! I have an appt with a Nephrologist at the end of this month. I'm sure they'd do the whole MRA thing for da brains and all of the specific (maybe they're MRI's?) of my body to be able to monitor how many little nodes are currently on my kidneys & how fast they're growing.
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It's more just keep your kidneys as healthy as possible for as long as possible and maybe they'll last me my whole life??
For instance, my mom didn't have any pain until around 56 (and she smoked her whole life). Her kidneys are completely covered - so much that you can't tell they are kidney shaped anymore.
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to look for aneurysms :(
id hate to see you in the unit for a miserable 2 week stay
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More money down the drain. :-P
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