So, here's the big lesson of the year that I give to you: if you have a life-shortening illness, don't ask the doctor how long you have to live, unless you have a really really good reason. Or unless you're pretty darn sure that it will only take a day or two off your life ( Read more... )

So, I'm sad. Of course? One nice thing this week is that I bought a bunch of beads. There was a bead trunk show and then a bead bazaar. I bought some really nice beads. I'm excited to get going with them, but need a few more supplies before I can do that. For now, I just have my $200 bag of beads to look at and run my fingers through. I ( Read more... )

So, I haven't posted much lately, not because of a lack of stuff going on in my life, but because I've been doing some soul searching. Soul searching about my life and what I want to do with it, and whether I want to have a baby. It was all leading up to a doctor's visit which occurred Friday 3/2. And, on that visit, in order to help make life ( Read more... )

Oh, also, an important bit from my sister's friend....
Shiloh Pitt?
Pile o' shit!

I'm a fan of Brangelina and all, but I can't wait for the tabloids to put that one together....

Okay so I did my MRI today. The machine was little, let me tell ya. I was told that it wasn't the smallest, which just tells me never to even look at the smallest. My arms were smashed down against my body the entire time, which, for the non-claustrophobics out there, suuuuuuucks! It was a completely different machine from what I've had before ( Read more... )

--The new clinic director (in the clinic for her second week) *honest to god* asked me if maybe I might have seizures because maybe I might have done cocaine earlier in my life. This was in the context of me explaining my history of brain cancer. My response? "Well, although I might have dabbled in cocaine a few times in my life, I feel ( Read more... )

So, my insurance has declined to pay for my next round of care. See, I'm now taking chemotherapy every four weeks (with concurrent bloodwork), and every eight weeks, I get an MRI to demonstrate that the cancer is at least not growing. If it were shown to be growing, we would stop the chemotherapy immediately and start a new type of treatment. ( Read more... )

So, I just finished my ?tenth? cycle of chemotherapy. Pretty much no side effects, yay me. It still always makes me a bit sad. I think I've taken a few months off the intensive grieving, but it's always kind of there. Today Jonathan and I saw The Fountain. Wanted to see it because it's an Aronofsky film, and then it turned out to be intense ( Read more... )

So Thanksgiving was complicated. Emotional. Punctuated by a few short happy moments...I don't know if I'd say actual bliss, though. I got sick, Jonathan got sick. Kids got bitten by a dog. Families dysfunctioned. People drove me nuts. Yeah, yeah. It's all par for the course, I suppose. I know I sound surly and rude, maybe I am. I do think ( Read more... )