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Virtually bedbound for nearly 17 years now :(
I read here, but dont post anymore. I can be found on facebook if anyone wants to stay in contact that way. x -
Friends list
Hello! For reasons that I've explained in a friends locked post I took the decision to do a clean up of my friends list and have now taken quite a few people off. If you missed that post and want be added back, please do yell! -
M.E. media coverage
It looks like there is going to be quite a bit of coverage about M.E on the news tonight in the UK, following the death of Lynn Gilderdale. Fingers crossed that it'll be good and that someone will now listen, how many more have to die ( Read more... ) -
Amazon and the Deathly Hallows
I'm a bit disgruntled ( Read more... ) -
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Stephen Fry AND George Michael are on Parkinson next Saturday. Oh my! It doesn't get much better than that. The Scissor Sisters are on as well which doesn't hurt. -
ME Awareness Week
I've sent off my 25% ME Group letter and statements to my MP for ME Awareness Week. I would love to do so much more and am upset that I'm just not able to but what I can do is spread the word about these statements and this letter ( Read more... ) -
Customer service
One of my pet hates is when something I've bought dies/explodes*/falls apart or isn't what it says on the tin, the company rather than saying "I'm terribly sorry madam, I shall issue you a refund" instead reply we've sold loads of these and no one else has complained! Call me old fashioned if you like but I think that's terrible customer service, I ( Read more... ) -
Lost in LiveJournal
Didn't there used to be a "My LJ" thing (or something like that) where you could see your friends birthday dates? Or at least the ones comin up. Where's it gone? -
LP/CBT
"That fact is that people with ME are caught in an irreversible trap of illness/anxiety and stress about the illness/leading to worse illness and back to the stress and so on and so on."
This is completely untrue.
"Wake up and do yourself a favour if you ever want to recover.Unfortunately, it's you who needs to wake up. If only it were this ( Read more... ) -
E-petition
This is an e-petition on a UK Government website. (You need to be a British citizen or resident to sign.)
http://petitions.pm.gov.uk/ME-is-real/
We the undersigned petition the Prime Minister to get the Health Service and medical profession to accept the WHO classification of ( Read more... )