unless you are sick and unable to care for yourself for a long time, with no income, you have no idea the stress it causes to have to rely on others. for three years i've been depending on the generosity of friends and family to survive. i have no money, so sean, ben, chad, my mom, and sean's parents take on the brunt of my expenses ( Read more... )

at my doctor's appointment on tuesday i was told that i should probably go back on Rituxan soon ( Read more... )

Since being diagnosed with Fibromyalgia, my periods have become a lot worse. Extremely painful cramps, extremely painful migraine, extreme exhaustion. Fibromyalgia just takes any pain or symptom and amplifies it by one thousand.

http://members.aol.com/fibroworld/sympt.htm

"Premenstrual Syndrome (PMS). If you have FM and have menstrual ( Read more... )

Some jealous person from Robinhoodfund has taken it upon themselves to post obnoxious comments on my blog anonymously. Your IP has been tracked, and if you continue to do it, I'll report you to RHF - who I'm sure won't be pleased with your harassment of other members.

:)

Mike Patton, musician extraordinaire. If you don't know of him, look him up. He was involved with a lot of bands, including Mr. Bungle, Faith No More, Fantomas, Peeping Tom and Tomahawk. Tomahawk just released a new album called Anonymous and it's all Native American tribal style music. It's really amazing, unique sounds that you don't hear in ( Read more... )

The first thing I've posted that is explicitly gross and graphic. I'm writing this blog, partially, to make people aware of the various little daily things that people with compromised immune systems have to deal with, that other people typically don't. We're so much more susceptible and sensitive to illnesses and reactions, that if something can ( Read more... )

It seems like in most people's case, the grass is greener on the other side. But then I think again, and it's not necessarily like that. I know a lot of people who have great relationships with their family. I don't think I do. I feel like a complete outcast and like every single one of them dislikes me and they don't grasp what is going on with me ( Read more... )

having Lupus and Fibromyalgia (or other autoimmune diseases) is the social aspect. It's extremely difficult to make and keep friends when you're ill. People are too busy and too wrapped up in their own stuff (not that that's a bad thing.) to care about what you're dealing with all the time. There's only so much they can feel for me. I constantly ( Read more... )

I searched online for a petition about banning incandescent lightbulbs and found this website. I emailed the owner, since he didn't address the Lupus and sun allergy issue on his site ( Read more... )

The other day I dugg an article about the possibility of banning regular lightbulbs for the, apparently, more energy efficient fluorescent bulbs. Recently, I had been informed from a friend who also has Lupus that not only are we (people with lupus) sensitive to sunlight, but also to the UV rays in fluorescent lights as well. I was completely ( Read more... )