Wow. I haven't been on here in quite some time. What a crazy crazy crazy few years it's been.

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Wow, it's been a year!  And what a year!  We went to a convention in Detroit, during the summer Xerxes did a lot of swimming, We went to Pennsic for the first time in 4 years, Tauna got put on the transplant list and celebrated 4 decades on this planet.  We are looking for a house, and waiting for the transplant.  Tauna's health is really, poor, ( Read more... )

XERXES IS OFF THE OXYGEN AS OF THIS MORNING!!!!!

His pulmonologist just called Tauna. He did very well on his sleep study. And we were both sure he'd have to repeat, since he stayed up most the night! He's been on breathing machines for 20 months, 10 days, 14 hours and 53 minutes...

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I (we) lost a dear friend and brother recently. This is for him.

Abandon
-- for Nathan "Dirk" Smiler,
Feb 21, 1972 - Feb 15, 2010

Abandoned and lost, we're abandoned to grief
This shock to our lives is beyond our belief
(lost in a darkened land)
Our brother is gone, he is not coming back
Our hearts fill to bursting with ( Read more... )

Happy Birthday little Xuxu!  He is, by the way 27 and a half inches long, 17 and a half pounds, and can support his weight on his feet !(for maybe a minute), and is comfortable supporting himself on his arms,  
And now, the rest of the story...

(Continued from Jan 7th, 2009 posting)

The wait was interminable.  Astrology geek that I am, I was pacing ( Read more... )

Our little Xuxu at 9 Months, 11 days.

( Read more... )

Xerxes came home on the 30th at 3:30pm, actually, not the 29th, and boy has it been hard.  More about that later.   I just found out that he and Tauna had to go to the emergency room  (Johns Hopkins, this time) so they could suction out his sinuses -- he was having trouble breathing, and was very distressed.  She said he's fine and happy now, but ( Read more... )

Six Months ago, indigo_eris  had just settled into the Hospital for the long stretch.  She knew she would be there until the baby was delivered, which would hopefully be at least a few weeks away still.  It was a Monday, and I had pspent the weekend with her, slept at the hospital, used their shower facilities, and left for work.  I parked at Penn Station, ( Read more... )

The Doctors at Mount Washingotn told us yesterday.
He will be 175 Days old, which is 25 Weeks, which is 5 months 22 days.

Baby New Year!


( Read more... )

Xerxes turned Five Months Old Yesterday!!

And So much has been happening!!!

A week ago Sunday Xerxes was moved to Satellite Care! It's a different room from where he's been his whole life (except for surgery), and was a major step to going home.

Five days later, he leaves the NICU after 151 days total! He was transferred to Mt. Washington last ( Read more... )